Sick and tired

02/Oct/2010

Comments: 9 readers have left a comment

Felicity Amazon. Felicity Amazon.

FELICITY Amazon is locked in a bureaucratic battle to get a public house that suits her disability needs, and claims the Department of Housing is not willing to help.

Suffering severe chronic fatigue syndrome and a side complication known as multiple chemical sensitivity, Ms Amazon’s situation is desperate.

Despite her doctor officially recognising her as disabled and writing to the Department of Housing, she has been forced to live beyond her means, renting a house in Mundaring for $300 a week on a disability pension.

She claims her pleas to the department to help her after they gave her an unsuitable house in Denmark have fallen on deaf ears.

Ms Amazon’s condition is so severe she can only consume raw milk, cannot perform simple household chores like washing the dishes, and suffers hyper-sensitivity to synthetic substances such as detergents, carpets and glues.

She believes the Department of Housing is not honouring its own standards of service.

After she was moved into the newly-built home in Denmark, she suffered ongoing health problems including respiratory complications, body pain, bowel and nose bleeds for up to two weeks at a time.

“When I found out they were moving me into a new house I was quite shocked and I tried to tell them that the formaldehyde emitted from MDF materials used in new buildings would make me sick, but they just kept telling me there was no such thing,” she said.

“In the end I was given no chance and told that if I didn’t take this house I might not get another for one or two years.”

Ms Amazon had decided to move out of the city to avoid pollution that was making her ill.

Despite her doctor confirming her condition with the department, she claims it was unsympathetic to re-housing her, forcing her to live and sleep on the open verandah for more than a year to avoid the chemicals in the house.

The Gazette contacted the department on several occasions about Ms Amazon’s plight, but it would not comment on individual tenancies nor confirm if they were looking at her situation.

However, the department did confirm it had no policy regarding clients with chemical sensitivity and that it assessed individual cases based on medical advice.

On its website, the Department of Housing states appropriate housing would be provided to meet the needs of those assessed as being disabled, including the modification of existing homes.

Ms Amazon claims this has not happened in her case and the department remains unwilling to help her find a suitable home, or modify the Denmark home.

Chronic Fatigue Syndrome affects more than 14,000 people in WA, and Chronic Fatigue Society of WA secretary Leonie McFaull described living with Multiple Chemical Sensitivity as like “dodging bullets”.


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What everyone else is thinking

Angie

31/01/2013

I have MCS and live in Belmont. I'm in Homeswest, as I have been for many years. I'm not as bad as Felicity, but today my feet are bandaged and hands are blistered, pounding headache and eyes blurry.. all because I stupidly had a can of Fanta yesterday!!! It's a growing problem as our systems can't get rid of the poison that CSIRO puts in foods/drinks and mostly in the water supply. I have an on tap filter which has helped, as I had severe metallic poisoning years ago. Hugs Felicity and hope all goes well for you. I suppose you have contacted your local MP and Today/Tonight might help x♥

cherryblossom

31/01/2013

Hi to all that have posted on here...... I am interested in meeting you people... as the isolation of this condition affects us all..... my email is jag7@westnet.com.au look forward to hearing from you.......

Also if anyone knows of an update to this article, as to how this lady is today, I would love to hear that story too........ thx peeps...

Susanne Willshire

07/11/2012

I have had similar experience for past 20 yrs. Govt depts spraying chemicals that are unsafe. Lost my job with immense bullying. Now living on a pension and having to move house again from Mandurah which I thought was safer. Here it is Mosquito spraying and I believe, Alcoa fumes. I am surprised at the number of people I talk to in Mandurah who are leaving. I spend my life running from different areas in a panic when they spray. Very isolated with this illness. Would love to get together...surely with a large number of people gathering and lobbying parliament we can make a difference. Perhaps apathy is the problem. We need to band together. I am also bought to tears often by the derision and belittling behaviour and disbelief of other people when you mention your problem. The angry response if you mention someones perfume is making you ill. Mostly I feel sad and alone due to the isolation of this illness. Not one family member believes or supports me with this illness. SAD

Cherryblossom

21/07/2012

Have just read the above Sick and Tired.. and that describes myself too... I have been forced to resign from work.. sadly lost my husband just over 1 yr ago.. Have been forced to sell our property in Toodyay after 11 years.. and MOve to Rockingham close to family....I have been forced to take out private rental, of a unit, nothing flash but that is costing me $340 per week, my disability pension is only 425 per week. I have $100 per week, to run car, medical expenses, personal upkeep, pay bills, birthdays and Christmas to pay for, and everything else other people have to spend money on. How dio the Govt expect us to live?? I am eating into my personal money, that has to last me until i die. It is criminal in a sense.... and I feel and am prepared to lobby in numbers to any Govt body with all other suffers to get our plight heard, Today tonigh, anything and everthing... I would love to see a respons of ppl who will join this worth compaing?? We bneed to be heard and helped ANY TAKERS?

Kathy

18/11/2010

Hi Felicity, Its is difficult enough trying to cope with MCS without having to do battle with Government Departments. I hope you find a resolution for your housing needs. I have moved house several times in order to find a safe environment and spent a year in Denmark where I was much worse off due to the smoke coming from homes that burn wood for heating as well as constant prescribed bush burning which made me very ill. I was surprised to find out the bush fires also emit toxic chemicals. Where I live now is not too bad most of the time and I hope to remain put for a while Good luck, don`t give up, keep hammering away at the housing department and hopefully one day you might find someone with some compassion who will be prepared to help you.

Dianne

30/10/2010

Hi Felicity. I have MCS too, living near Quinns, so we are close. I also have MCS. I have also lived in Denmark, for 10 years, where the whole town is aware of MCS. Wishing i could go back there, but cant afford to move!! I am also in a battle with dept of housing - regarding access to safe housing, and i am also paying $300 a week on the pension - I cant afford it. We should get together so that the dept is more aware of this issue. Not sure how i can contact you, but sending this message may arrive at you. Lucky i did a search for MCS/WA otherwise i would never have seen this article.....

Dorothy M Bowes

11/10/2010

The Australian Government has signed on to Interntional Conventions on Human Rights. Ms Amazon has the human right of access to premises and services. She should take the Housing Department to the Human Rights Commission because her case is winnable. If more people would do this we would make faster progress and see less of these stories.

Juanita

10/10/2010

My mother is in the exact same situation, but in NSW. Her attempts to get help from the Department of Housing have fallen on deaf ears.

Patricia Ford

09/10/2010

My sympathy goes to Ms Amazon.the one thing she has going for her is a doctor that believes in her.Ihave had me/cfs for 21 years and also have multiple chemical sensitivities, as Leonie says it is indeed like dodging bullets, For many years my local council has phoned me when spraying takes place in a nearby lake area and bush.For 18years I have been aided by Silver Chain, People who Care for domestic help without chemicals.They have rates for pensions. Housing is thankfully a problem I have not had..When all else fails.....Pray ! best wishes Patricia

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